15. Cognitive Delays and Regression: The Mind’s Retreat
While Tay-Sachs primarily affects the body, the mind isn’t spared. Initial cognitive delays might evolve into significant regression. Skills once mastered, like recognizing loved ones or responding to stimuli, slowly slip away.
Interventions focus on maintaining existing cognitive functions and providing stimulation. Therapies, both pharmacological and non-pharmacological, aim to slow down this decline and offer moments of clarity amidst the fog.
Cognitive regression isn’t a solitary phenomenon. It brings along a wave of emotional and behavioral changes. Episodes of unexplained distress, mood swings, or even moments of apathy can manifest.
Family and caregivers become the anchors, providing stability and understanding. Tailored interventions, counseling, and creating an environment of predictability can offer solace in these turbulent times. (15)
