2. The Spectrum of Life Expectancy in LGS
In yesteryears, the very mention of Lennox Gastaut Syndrome was synonymous with a grim prognosis. Reduced life expectancy was almost a given, a heartbreaking reality that many families had to face.
Fast forward to today, the landscape looks different. The leaps in medical science and the plethora of research dedicated to epilepsy and LGS, in particular, have meant that many individuals with this condition are living well into adulthood. This isn’t just about adding years to life but adding life to years. The experiences, milestones, and memories created along the way paint a more hopeful picture for LGS families.
However, it’s crucial to understand that this isn’t a blanket guarantee. Life expectancy in LGS is influenced by a myriad of factors. The spectrum is broad – from those who live relatively uncomplicated lives to those who face significant challenges. The severity and type of seizures, the presence of other health conditions, and even the effectiveness and timeliness of treatments play roles in determining where an individual might fall on this spectrum. (2)
