14. The Struggle with Fine Motor Skills: The Hidden Hurdle in Juvenile HD
Juvenile HD can take away a child’s fine motor skills, turning simple tasks into formidable challenges. Writing, buttoning a shirt, or eating with utensils may become increasingly difficult. It’s like a thief, stealthily stealing the child’s independence.
This struggle isn’t always evident to the casual observer. It’s hidden in the child’s frustration when trying to tie shoelaces or color within the lines. It’s a battle fought behind closed doors, only visible to those who look closely.
Loss of fine motor skills can affect the child’s self-esteem. They may start to pull away from activities they once enjoyed, for fear of being unable to perform as well as their peers. It’s a silent retreat, fueled by frustration and fear of failure.
For families, this shift can be heartbreaking. Watching their child grapple with tasks that once seemed trivial can be a harsh reminder of the disease’s unrelenting progression.
Yet, occupational therapy can offer some relief. Tailored strategies, assistive devices, and modifications can empower the child to reclaim their independence, one task at a time. (14)
