8. Trapped in a Body That’s Failing: The Physical Decline in Juvenile HD
As the disease progresses, physical decline becomes evident. The child’s body, once a vessel of limitless energy, begins to fail. Tasks that were once easy become mountains too high to climb. It’s like being an athlete sidelined by an injury, watching the game from the bench while longing to play.
The physical decline in Juvenile HD isn’t just about rigidity or slow movements. It includes weight loss, despite adequate nutrition. The child may begin to lose muscle tone, adding to the overall weakness. It’s like their body is slowly fading, becoming a mere shadow of its former self.
Everyday activities become daunting tasks. A walk in the park might become an exhausting endeavor. Holding a spoon, turning a page, or even getting out of bed might require Herculean effort.
The impact isn’t limited to the child. Watching their loved one battle their own body can be heartbreaking for families. It’s a cruel twist of fate, seeing their child struggle with tasks they once accomplished effortlessly. (8)
