12. Respecting Personal Identity: Celebrating the Person Beyond the Disease
Even as dementia changes many aspects of a person’s life, their unique identity remains intact. As a caregiver, recognizing and celebrating your loved one’s individuality is vital. It validates their worth, preserves their dignity, and fosters a deep connection.
Start by honoring their life history. Encourage conversations about their past and validate their experiences. Whether it’s through storytelling, looking at old photos, or listening to favorite songs, recalling the past can provide comfort and a sense of continuity.
Embrace their interests and hobbies. If they’ve always loved painting, provide art supplies. If they’re a music lover, organize regular music sessions. Even if their abilities change, they can still enjoy these activities in adapted ways.
Next, respect their personal preferences. From food choices to clothing selection, allow them to make decisions wherever possible. This preserves their autonomy and enhances self-esteem.
Avoid infantilizing them. Addressing your loved one as an adult and involving them in discussions about their care fosters respect and dignity. This also acknowledges their role as an active participant in their care journey.
Lastly, nurture their spirit. Whether it’s through religious rituals, nature walks, or simple meditative moments, spiritual nurturing can provide a sense of peace and purpose. Always remember, dementia affects a person’s memory and abilities, but it doesn’t diminish their human spirit. (12)
