8. Loss of Independent Mobility: A Defining Stage of HIBM
Loss of independent mobility often marks a defining stage in the progression of HIBM. While this symptom does not occur in the early stages of the disease, it is a critical aspect to consider in understanding the full impact of HIBM.
As HIBM progresses, the ongoing muscle weakness and wasting can significantly affect mobility. The symptoms like foot drop, frequent tripping, and overall muscle weakness can evolve to a point where independent mobility becomes increasingly difficult. Walking unaided might become challenging, leading to the increased use of mobility aids like canes, walkers, or wheelchairs.
The transition towards reliance on mobility aids can be a challenging emotional hurdle for many individuals. It marks a tangible shift in disease progression and can significantly impact one’s independence and way of life. However, it’s important to view mobility aids as tools for independence, enabling continued participation in activities of daily living and community involvement. (8)
