Fact 4: The Rarity of HLH
HLH may be a rare disease, but its impact is profound. About one in a million children are affected each year, making it a relatively rare condition. However, it’s important to note that the exact incidence in adults remains unknown.
The rarity of HLH may make it sound like a far-off possibility, but for those who are affected, it’s a very real and often frightening reality. The disease can strike without warning, turning lives upside down.
HLH may not be a household name like cancer or heart disease, but it is every bit as serious. Although it is rare, it can be severe or even life-threatening. This is why it’s so crucial for doctors and patients to be aware of this condition and its symptoms. (4)