Fact 14: Navigating Life with Huntington’s Disease – Adapting to a New Normal
Living with HD requires more than medical interventions – it demands a redefinition of what’s considered ‘normal.‘ It’s a reality that individuals with HD and their families must adapt to, armed with understanding, support, and resilience.
Achieving this adaptive lifestyle necessitates a multidisciplinary approach, integrating medical management with physical, occupational, and psychological therapies. With an integrated care strategy, individuals with HD can maintain their independence, manage their symptoms, and keep up their quality of life for as long as possible.
Activity is the lifeblood of living well with HD. Physical activity aids motor symptom management, cognitive exercises help maintain mental sharpness, and social activities provide emotional support. It’s about making every moment count.
Adjusting to life with HD is a process, not a one-time event. The changes are continuous, needing frequent reassessments and readjustments. But it’s through these changes that life asserts itself, making each day meaningful.
Living with HD is about more than survival – it’s about carving a life worth living amidst challenges. It’s about finding joy in moments, strength in love, and hope in progress. (14)
