12. Behavioral Changes: The Invisible Challenge of Juvenile Huntington’s Disease
Perhaps one of the most challenging aspects of JHD to navigate are the behavioral changes. Children with JHD may exhibit a range of behavioral symptoms, from mood swings and irritability to apathy and social withdrawal. These symptoms can be distressing for both the child and their family, creating an emotional strain and complicating interpersonal relationships.
These behavioral changes are a direct result of the disease’s impact on the brain, specifically areas that regulate mood and behavior. The same mutant huntingtin protein that leads to motor symptoms also affects these areas, leading to changes in the child’s personality and behavior.
It’s important to note that these behavioral changes are not the child’s fault, nor are they within the child’s control. They’re a symptom of the disease, much like the physical symptoms, and require compassion, understanding, and appropriate treatment. (12)
