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Understanding Multiple System Atrophy: 15 Crucial Facts You Need to Know

Diseases and ConditionsPain

Fact 13. Navigating the Healthcare System with MSA

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Navigating the Healthcare System with MSA
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For individuals diagnosed with MSA and their caregivers, navigating the healthcare system can be daunting. However, understanding how to access and coordinate care can significantly improve disease management and quality of life.

One key aspect is building a comprehensive healthcare team. This often includes neurologists, physical therapists, speech therapists, urologists, and other specialists. Having a primary care provider who can coordinate this care is also essential.

Understanding insurance coverage, medication costs, and available resources is also critical. Many organizations provide assistance and resources for individuals living with MSA, from financial aid to support groups and educational materials. (13)

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Our team of medical experts has created and reviewed this article to ensure that you receive the most accurate information available, in accordance with the latest research.

Sources:

1. https://www.mayoclinic.org/diseases-conditions/multiple-system-atrophy/symptoms-causes/syc-20356153

2. https://pn.bmj.com/content/23/3/208

3. https://www.multiplesystematrophy.org/about-msa/types-and-symptoms/

4. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5561534

5. https://www.ninds.nih.gov/health-information/disorders/multiple-system-atrophy

6. https://www.nhs.uk/conditions/multiple-system-atrophy/

7. https://rarediseases.org/rare-diseases/multiple-system-atrophy/

8. https://www.multiplesystematrophy.org/msa-research/latest-research-results/

9. https://www.orpha.net/consor/cgi-bin/OC_Exp.php?Lng=GB&Expert=102

10. https://pubmed.ncbi.nlm.nih.gov/21179616/

11. https://www.sciencedirect.com/science/article/abs/pii/S1353802015003788

12. https://www.cambridge.org/core/journals/canadian-journal-of-neurological-sciences/article/abs/multiple-system-atrophy-caregivers-experience-a-mixed-methods-study/5CCB33E316645BF99F8DC0749326A7AB

13. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3002658/

14. https://www.multiplesystematrophy.org/blog/strategies-for-life-after-a-diagnosis-advice-from-patients-and-care-partners/

15. https://www.sciencedirect.com/science/article/pii/S0301008214000318