Fact 13. The Importance of Support and Education in Managing Paget’s Disease
Living with Paget’s disease can be challenging, but support and education can play a crucial role in managing the disease. By understanding the condition, individuals with Paget’s disease can better manage their symptoms, make informed decisions about their treatment, and improve their quality of life.
Education about the nature of the disease, its potential complications, and treatment options can empower patients and their families. It can help them understand what to expect, how to manage symptoms, and when to seek medical help. It can also aid in understanding the importance of adhering to treatment plans, including medication schedules and lifestyle modifications.
Support can come in various forms. Healthcare providers, including doctors, nurses, and physical therapists, play a key role in providing information, guiding treatment, and offering reassurance. Patient support groups, both in person and online, can provide a safe space for individuals to share their experiences, learn from others, and receive emotional support. (13)
