Symptom 12: Sensory Loss – A Silent Thief
A significant yet often overlooked symptom of spinocerebellar ataxia is sensory loss. Our senses connect us to the world, letting us feel the warmth of a summer’s day, or the softness of a well-loved sweater. When these senses start to fade, it can feel as though one’s connection to the world is fraying.
Sensory loss in SCA can begin subtly. You might find yourself turning up the volume on the television or needing more salt on your food. Maybe you stumble more often, not because of the more obvious balance issues that come with SCA, but because your feet don’t quite feel the ground under them as well as they used to.
As SCA progresses, this sensory loss can become more pronounced. You might find it harder to discern temperatures, affecting everything from enjoying a hot cup of coffee to taking a comfortable bath. Your sense of touch might dwindle, making it more difficult to grasp objects or perform fine motor tasks.
This sensory loss can have profound implications for quality of life. It can make daily tasks more challenging and lead to a decreased sense of self-efficacy. It can also be emotionally taxing, as the world can seem less vibrant and less engaging.
There is currently no cure for sensory loss in SCA, but there are ways to manage its impacts. Adaptive devices can assist with daily tasks, and regular check-ins with healthcare professionals can help to monitor progression and adapt strategies as needed. Additionally, it can be helpful to connect with others living with SCA to share experiences and coping strategies. (12)
