Fact 7: Navigating Life with Dravet Syndrome (SMEI)
Life with Dravet Syndrome means living with uncertainty. Seizures can occur without warning, and new challenges may emerge as the child grows. Coping strategies, including flexibility and building a strong support network, become essential.
Long-term planning must be balanced with the ability to adapt. As the child with Dravet Syndrome matures, needs and challenges may change. Continuous assessment and adaptation in care, education, and support are crucial for a fulfilling life.
Engaging socially and being part of a community often requires extra effort for those with Dravet Syndrome. Building awareness, encouraging inclusivity, and actively participating in community events can foster social growth and emotional well-being.
Encouraging independence and building self-esteem are essential for growth and fulfillment. Tailored support, encouragement, and the right opportunities can help individuals with Dravet Syndrome develop self-confidence and achieve their potential. (7)
